Ramblings
Things I’m Afraid To Tell You.
On 03, May 2012 | 27 Comments | In Ramblings | By Molly

Today I learned about a small movement swirling around the blogosphere that has come to be known as Things I’m Afraid To Tell You. I first read about it over at Creature Comforts, where, in a beautiful, courageous post, Ez revealed the fears and struggles she faces in her life that she has never allowed to creep into her online image. Then I read many of the posts by other brave bloggers (partial list at the end of this post) and was doubly inspired to write my own.
There is actually one particular thing that I’ve been too afraid to tell you all for a long time. I’ve even written posts about it before, only to delete them immediately. Today I am going to tell you something that feels very personal but that I’ve decided shouldn’t be personal because millions of Americans have the same problem and if we don’t talk about it, I fear that nothing will be done.
I am not eligible for health insurance in the state of California.
I am in my twenties. I have a very healthy diet. I exercise three to four times a week for at least an hour at a time. I do not smoke and I barely ever drink. I have never been hospitalized or had any surgeries. But, I suffer from have a non-life-threatening disease. I can’t bring myself to say the word “suffer” because it does not make me suffer anymore. This disease is completely controlled by one pill every day, each of which has a wholesale value of about 36¢.
It doesn’t matter what disease I have – that is not the point – because in the state of California, having one of at least 28 “illnesses” (which I put in scare quotes since one of them is pregnancy) is cause for automatic decline. These conditions range from cancer to sleep apnea to any mental illness for which the patient has received more than 6 months of continuous treatment. (Read the whole list here.) This applies to every health insurance company in California – no exceptions.
When I turned 26 and was no longer eligible to be on my parents’ health insurance policy, I was forced to face my fears and apply for insurance here in California. Because I am a freelancer and am therefore not eligible for a group plan through any job, I had to look for an individual plan. I expected head butting and high premiums but I did not expect to be turned away by every company. Even if I were rich and could afford to pay any amount under the sun, no California insurance company would cover me. There are no loopholes and no exceptions for special cases.
Today I pay $732 per month for a COBRA plan through the state of Maine, which is not the best plan I could find for myself…it is the only plan. And that is before any doctor visit copays or payment of my (extremely high) deductible. If I should get sick, need new glasses, or have to visit the dentist, I would have to pay more (since it also doesn’t include vision or dental). On top of that, COBRA is only an 18-month “solution” and very soon I will no longer be eligible even for this policy. Given the recent Supreme Court sessions about Obama Care, my hopes for a solution in 2014 are very low, and even if Obama Care is implemented, there will be a period of time before its implementation and after I’m kicked off COBRA where I will have to find a new plan.
Senators Barbara Boxer and Dianne Feinstein, State Representatives Mike Feuer and Fran Pavley: I hope you’re reading this.
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Other participating bloggers (list via Creature Comforts):
Design for Mankind | Little Brown Pen | Beautiful Hello | Curating Style | Sweet Fine Day | The Jealous Curator | Happy Days | Sage & Berries | Really Handmade | Peck Life | Satsuma Press | Rena Tom | For the Easily Distracted | The Hemborg Wife | Vitamini Handmade |Courtney Khail Stationery and Design | Meg in Progress | Dando Photography Blog | Widdershins22 | Alison Citron | Pink Moon Daily | Just Pretty Things | From China Village |Tea with Me | The Darling Ewe | Not Your Average Ordinary | The Electric Typewriter |Elleby Design | Parsimonia {Secondhand With Style}
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Wowsers. That is pretty awful. I don’t mean to gloat but you have just made me even more grateful that I live in a country where there is free medical services. I have a mum who regularly has to stay in hospital for a recurring stomach problem and the greatest relief is that I know I won’t be smacked with a huge bill at the end of the process. I can only imagine the stress you must go through and I can’t imagine it helps your condition. I hope your senators do listen.
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Being a gal who works with insurance everyday (not on their side), I know how absolutely ridiculous, frustrating and unfair insurance companies are. I myself have my fingers crossed for obama care, but who know if that will ever happen. I mean, what other options are there?
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I hate that this is the state of healthcare in the US! Outrageous!
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Ugh. I can totally relate. I was off my parents insurance before the age increased and had to get my own since I was working as a contractor. I got turned down left and right because of a medication a doctor had prescribed for a condition I ended up not having about 5 years earlier. It’s completely ridiculous.
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I am thankful at the moment that I have health insurance. I am on short term disability, soon to be long term, through my job, due to Lupus and migraines (two things on that list). Here in my state I would have gotten turned down for insurance too. Funny thing is I do not qualify for SS disability benefits either (I am just not sick enough, but too sick to be insured). Stooopid.
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Oh my, that is awful. I just don’t get the health insurance situation in the U.S. I am from Germany, so I never had issues with health care and during our 3 years in the U.S. we were covered by an awesome insurance plan of my husband’s company. I don’t understand why they let so many people live without health insurance. I hope that you will find a way to get what you so need. This is ridiculous!
BTW, I just found your blog through these wonderful posts! I will stick around, that’s for sure! Hugs xxx -
It is unfortunately one of the reasons we recently moved–insurance. I am a freelancer trying to get pregnant and prenatal insurance at my age would have cost MORE than our rent! I am so sorry and I am happy you wrote this. You are a very talented young woman, wishing you the very best in continued success + good health;)
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That is just too awful for words.The system in the Uk is amazing.. everyone is insured under the national health scheme..even me- and I am not English but Dutch and moved to the UK ! Come to the UK is not what you want to hear but I am almost inclined to say so… My blog post on this topic is is on this link http://moderncountrylady.blogspot.co.uk/2012/05/things-i-am-afraid-to-tell-you.html
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On quick thought – a possible round about way to get insurance may be to look for a Professional organization that offers group health insurance options.
Alumni associations and apparently AAA may even be something to look into. http://discover.aaa.com/Insurance/Health/
Not saying the system doesn’t need to change, just mentioning this as an avenue it doesn’t sound like you’ve explored. If you have, just ignore me.
AND even if this route doesn’t help, since you said you have a high deductible you should at the very least look into a Medical Savings account to help cover some of those costs and reduce your income taxes (money goes into the account pretax and can be used for deductibles, dental and more.)
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Hi, I realize this is an old blog post so you may have already learned this… but there’s a great pair of state-run programs in California that provide subsidized health insurance to residents with pre-existing conditions. The programs are called PCIP and MRMIP, and I have good insurance from Kaiser through MRMIP for $350 a month.
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That is terrible. I will tell you my brother in law did the 6 month without to qualify for MRMIP and he had just had his heart valve replaced a year in a half ago.
It’s scary and wrong that they weed people out like that, but I think it’s worth it in the long run. I wish you the best of luck and health.
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